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THE RUBY
MPNs
OUR TEAM
for people with rare, chronic blood cancers known as
Myeloproliferative Neoplasms (MPNs)
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The Ruby Red Foundation is a nationally registered health promotion charity.
We are a volunteer organisation and all donations are tax deductible.
Our purpose is to make MPN research happen, bringing hope, strength and resilience to people with MPNs.
MPNs are hidden, debilitating, complicated and chronic blood cancers that affect normal blood production in the bone marrow. With a focus on raising funds for research, The Ruby Red Foundation supports the MPN community – including patients, caregivers, healthcare professionals and researchers.
Ruby Red is working to identify and prioritise MPN research projects, increase understanding of MPNs, advance treatment and ultimately find a cure.
We also aim to educate – giving people with MPNs a voice as well as an opportunity to get involved and share their story.
The Ruby Red Foundation is a registered charity, currently licensed or permitted to fundraise in each of the States and Territories throughout Australia (NSW, ACT, VIC, TAS, WA, SA, NT and QLD).
The Ruby Red Foundation is committed to raising vital funds for MPN-specific research over the long term, unravelling the disease process, its cause, and ultimately finding a cure.
Although MPNs are rare, there have been enormous breakthroughs in the last decade, including the discovery of some of the underlying acquired genetic mutations, but there is still no cure. Existing treatments can have harsh side effects, serious risks and can’t prevent relapse or disease progression.
Ruby Red exists to work with MPN experts, healthcare professionals and researchers to identify and support research projects which hold promise for MPN treatments in Australia.
Ruby Red brings people with MPNs hope, strength and resilience.
Strength and resilience make the blood red ruby the most magnificent and virtuous of all gemstones. It has imperfections – like us all – which only increase its value and rarity.
The red Ruby is the bloodstone, strengthening the heart, stimulating circulation and enhancing blood flow.
Symbolic of the sun, the ruby shines like an inextinguishable flame, which can’t be hidden.
Believed to aid the treatment of blood disorders & heart disease, ruby detoxifies the blood, stimulates the spleen, circulation & energy.
Ruby instills chi, providing emotional & physical strength, stamina & endurance. Ruby inspires joy, encouraging us to live fully, stirring the blood & stimulating the heart.
Ruby Red is the colour of self-confidence, built on fearlessness & action. It reflects passion, energy & life.
Myeloproliferative Neoplasms (MPNs) are a group of rare, chronic blood cancers that affect the production of normal blood cells in the bone marrow. The most common MPNs are Essential Thrombocythaemia (ET), Polycythaemia Vera (PV) and Primary Myelofibrosis (PMF). MPNs usually occur in people over 60 years of age but are increasingly diagnosed in people under 40 years and occasionally in children.
In MPNs the bone marrow overproduces one or more types of blood cells (red cells, white cells or platelets). If not promptly diagnosed and effectively treated the excessive numbers of blood cells can cause serious and devastating complications, such as stroke and heart attack.
Early diagnosis, monitoring and therapy are crucial
Founding Executive Director
Treasurer
Director
Design
Director, Personnel
Director, Fundraising & Strategy
Director, Strategic Planning
Governance & Legal Director
Chair, Medical Research Director
Director, Medical Marketing
Haematologist, NSW
Haematology Nurse, NSW
Haematologist, QLD
Haematologist, VIC
Haematologist, SA
Haematologist, WA
Paediatric Haematologist, WA
Celebrate with a Bright Red Day lunch, tea party or open garden.
Celebrate Ruby Tuesday or nominate The Ruby Red Foundation for your next corporate function.
Give something up, start a new exercise regime or take up a new hobby.
See what’s on in your community. e.g. a fete or a fun run and nominate The Ruby Foundation.
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MYELOPROLIFERATIVE NEOPLASM (MPN) AUSTRALIA LTD, ABN: 32611972751
Making MPN research happen
